Thursday, November 27, 2014

Lor's VUC Tests

Last Friday, November 21st at 4:00 PM I received a phone call from the insurance company stating that Lorelai's tests that was scheduled for yesterday was denied due to the the fact that the tests could be done in LaCrosse.  Within 15 minutes I had 5 phone calls in and had another dictation from the dr coming stating the importance of having the tests done at Mayo.  It was a very long weekend of waiting and a LOT of praying.  

Tuesday at 11:35 AM I received the phone call from the insurance stating that they reevaluated her case and she was approved for her tests.  I picked her up from school at 2:55 and we were on the road headed for Rochester by 3:30.  What a world-wind it was but we got up to the hotel by dark and settled in for the night.  I told her we could go swimming, shopping, out to eat...whatever she wanted to do.  Nope she got her jammies on, jumped into bed, turned the cartoons on and stated "the food can come to me!"  WOW how fast they learn the ropes of being a princess.  :)

Wednesday we were up, dressed, ate breakfast and at the clinic for our first test by 8 AM.  Ultrasound was very easy.  It was a very reassuring test for me as well as the ultrasound tech's daughter had to have these tests and surgery. She talked to me about what happened and how she was doing great now.  She did tell me that if one child has the VUC there is a 30% chance another child can have this which I did not know before.  

The VUC test was not pleasant but I had already prepared myself for that since it was not pleasant when Ellaree had her test done 3 years ago.  Even though she screamed and cried she was very brave and did a great job!  The test in itself took less then 10 minutes to do since it was very evident that she had the VUC reflux on both sides.  She is a stage 2-3 on the left side and a 1-2 on the right side.

After meeting with her pediatric urologist nurse practitioner (dr was in surgery) we are hopefully setting up to do a minor surgery next Wed Dec 3rd.  We are waiting to hear from the dr to clarify and then we will proceed.  Should hear tomorrow.  The procedure is called a VUC Endoscopy Deflux.  There is an 85% success rate on this.  If this does not work we can then either do it again or do the open procedure which is a 90% success rate.  

We are very thankful for all the family & friends who have helped with the kids, prayed, gave encouraging words and support.  We are very thankful and blessed.  


Thursday, November 20, 2014

Lor Update

Well November 13th has come and gone but I am finally finding time to update on her appointment in Rochester.  I am so thankful that we have such good drs that are willing to send us on to specialists when they need to and know when they need the help.

Lorelai and I ventured up as soon as we put Ellaree on the bus.  Mr. Harry stayed overnight at the farm with Papa Harry and Nonie the night before so I was thankful not to have to worry about getting him ready and I could focus on getting Lorelai out the door on time.

As expected the appointment was ONLY a consult.  They asked many questions and the minute I mentioned that Ellaree had the same signs & symptoms and had the VUC test they wanted Lorelai to have this test done.  They also said that the ultrasound done in LaCrosse was incomplete as they only scanned her kidneys but did not scan her bladder.  Therefore she will have another ultrasound done as well.  I requested a Wednesday for all her tests done so that Harry could go with us as he has Wed off.  Well they scheduled her tests for Wed. Nov 26th.  Unfortunately that is the day before Thanksgiving therefore Harry has to work that day for two reasons...1) so he can have Thursday off for Thanksgiving and 2) it is the busiest day before Thanksgiving and he has to stop at every store.
So with that being said Lorelai and I will be venturing back up to Rochester by ourselves.  Her first test is at 8 AM so we will leave Tues afternoon and stay in a hotel.  I have had so many wonderful family and friends to offer to come with and I am so very thankful for their offers but I think I will take this precious quality time with her and spend it shopping and at the pool before her very long day the next day.

What are we doing with the other two?  Well Mr. Harry will venture back to the farm.  Poor guy has to help Papa Harry around the house, drive tractor and anything else he might think up to do on a farm!  He's heartbroken his momma is leaving.  ;)  Grama will come to the rescue to help with Ellaree.  She will come up to get Ellaree on the bus and then she will be back in time to get her off the bus on Wed.  Ellaree is very excited for one-on-one quality time with Daddy on Tuesday night.  Our kids are so good about rolling with the punches.

So our schedule for Wed.

8:00 AM is urinalysis and ultrasound
9:45 AM VUC
2:00 PM Meet  with Dr.

Prayers are so very welcomed at this time.  The dr did say that she is concerned about her kidneys as this has went on far too long with no answers.

I have added the link to the Mayo definition of what VUC is, symptoms, and procedures.

Tuesday, November 11, 2014

Love Him!

After 8 years he still melts my heart every time I see him. He has been my rock through thick and thin. And I am honored to say that he is my best friend, my love, my help mate. And I thank God for choosing him for me. I love you Harry with all my heart! Happy Anniversary!